Every Person with Angelman Syndrome is Unique https://www.youtube.com/watch?v=U5J0kvFSTtA The Global Angelman Syndrome RegistryThe Global Angelman Syndrome Registry is the first online Patient Driven registry for Angelman Syndrome; putting power in the hands of those who care for someone with the Syndrome. This registry represents an important step towards better outcomes for individuals with Angelman Syndrome
Domain | angelmansyndrome.org |
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Homepage URL | http://www.angelmansyndrome.org |
Sprache | englisch |